Showing posts with label Be. Show all posts
Showing posts with label Be. Show all posts

Sunday, May 14, 2017

Nerve Damage Patients Need To Be Aware Of Fake Neuropathy News


Today's short post (see link below) looks at the current internet trend of tricking readers into thinking you're a serious information-providing site about neuropathy and then hitting you with the hard sell at the end. It's clever and insidious and is part of the advertising pyramid that seeks to take our last cents and convince us that they're doing us a favour by doing it.


Fake News Hits The Neuropathy Web
27th February 2017 Dave R.

I'm constantly looking for articles with information that may be of benefit to people living with nerve damage (neuropathy) but rejecting those that involve advertising a product or service. There are various 'newspaper' sites and blogs available (like mine) that attempt to do this on a daily basis but because they tend to rely on search bots, they trawl and publish articles that are actually subtly-constructed advertisements. The titles and 70% of the content seem completely convincing and are often helpful in the information they provide but their intentions are a little more devilish than that. Having hooked the readers into believing they're reading a genuine information article about their medical problem, they then launch the hard-sell and promote their own product and/or service. Already convinced, the reader takes the next logical step and reaches for their credit card.

Naturally, the worst are those that suggest they have a 'cure' for neuropathy - believe me, they don't...there is no cure currently for neuropathy! The best we can hope for is temporary relief from the symptoms, so if you see the word 'cure' in their text; treat the article with enormous skepticism because it's Trumpist 'fake news'!

Many commercial sites are extremely subtle in their approach. They have a product and/or treatment that may indeed help alleviate your symptoms. There's nothing wrong with what they say and they are not providing untruths. What they are doing is selling a product or service, to people who are desperate for any form of relief and those people are the most vulnerable to sales patter. If what they offer seems reasonable to you, do your own research to see if you can do it yourself but much cheaper. For instance, many products that claim to improve neuropathy symptoms long term, contain combinations of recognised vitamins, minerals, anti-oxidants, herbs which you can easily buy for yourself at a much cheaper rate. Of course there's convenience in buying something in one 'packet' so to speak (multivitamin tablets are a very successful case in point) but before you shell out your hard-earned cash, make sure you know exactly what you're buying and what it contains or entails. Let the buyer beware! A little research can lighten the load on your wallet (as well as increasing your knowledge base substantially).

The basic message here is: take every promise with a pinch of salt; be hyper critical of what's on offer and armed with as many facts as you can find, make a decision based on what's best for you and not what the advertiser tells you is best. Applies to everything in life doesn't it but we're a vulnerable market. We live daily with sometimes unbearable symptoms and we're 'open' for the next 'best thing' and will seize on exaggerated promises as if they're an oasis in the desert.

Of course there are genuine clinics and practices out there and genuine supplements and alternative therapies and treatments and you may benefit greatly from what they offer but please be a critical consumer - if they want money from you, they're going to exaggerate their claims - it's the name of the game. However, neuropathy patients are used to disappointments and can never say that 'if one thing works for him or her, it's bound to work for me' - it doesn't - neuropathy's too individual and unique to each patient for that, so we have to take responsibility for our own treatment. It's a minefield unfortunately but we need to sort out the wheat from the chaff and reject those who are only interested in emptying our wallets. Desperate patients will clutch at straws (nobody knows that better than the long-term nerve pain sufferer) but we deserve better than to be seduced by sly and clever advertising jargon. It's up to you. If you don't buy into it, it will go away and you'll be doing a service for the rest of the community.


Good luck
Dave R.

Thursday, April 13, 2017

Neurofeedback May Well Be An Option For Neuropathy Patients


Today's short post from curetoday.com (see link below) will either interest you because you're open-minded enough to embrace the concept, or put you off because it all seems just a little too 'New Wave'. I fall somewhere in the middle but the idea of neurofeedback as a means of reducing drug intake and at the same time reducing pain, is a very attractive one that maybe deserves more respect than we at first give. The idea is that we can learn over time, to modify our pain responses subliminally and literally feel less pain because the brain reduces its own response to the symptoms. Worth a read to see what you think but if we're going in the direction of a more holistic approach to our nerve pain, then this deserves to be considered as part of the package. Still at the beginning stages.

That Tingling Feeling: New Therapies Are Evolving for Peripheral Neuropathy
MARILYN FENICHEL PUBLISHED: OCTOBER 21, 2016

Excitement is growing over new strategies for treating or avoiding peripheral neuropathy in patients with cancer.

Continue the conversation on CURE’s forum. >>

Talk about this article with other patients, caregivers, and advocates in the Breast cancer CURE discussion group.

During a neurofeedback session, small electroencephalogram (EEG) sensors are placed on the scalp and then connected to a computer. The sensors can track and record brain wave patterns. The participant then plays a series of computer games, with the goal of modifying aberrant waves. When a brain wave has been successfully modified, the participant receives a reward, either by hearing an appealing sound or viewing a pretty picture.

“This kind of learning is unconscious,” explains Prinsloo. “We find that, with repeated practice, usually over a period of 20 sessions, each lasting 30 minutes, the brain learns a new, healthier response to pain and numbness.”

Felecia Peters, 51, was recruited by MD Anderson to participate in its study for breast cancer patients. Diagnosed with stage 2 breast cancer in 2013, she started experiencing symptoms of CIPN while undergoing chemotherapy with Abraxane.

“It snuck up on me,” Peters recalls. “I had numbness, tingling and a sharp, stabbing pain in my feet that would come and go pretty quickly. Balance was also an issue. Sitting down and getting up was painful, as was using my hands to button things and put on small earrings. It hasn’t gone away since my treatment ended two years ago.”

The neurofeedback sessions were not difficult, though Peters remembers feeling sleepy sometimes. “The doctors wanted me to stay awake, but suggested that I nap when I got home,” Peters says. “They said that resting helps the brain remember what it just learned. Unfortunately, I wasn’t always able to follow that advice.”

After completing the 20 neurofeedback sessions, Peters has noticed a significant improvement; she hasn’t felt pain in a while, going up stairs is easier, her fine motor skills are better and she can also exercise more easily.

“I always walked, but now my feet don’t feel as heavy,” says Peters. “While I never fell, it was hard to feel what you were stepping on. It’s a weird feeling, hard to describe.”

As Prinsloo continues to work with women like Peters, she is optimistic that neurofeedback can make a difference.

“Neuropathy is a really debilitating condition,” Prinsloo says. “We’ve seen patients who can’t drive, button their clothes or get around without walkers. They can’t dance or enjoy life as much as they would like. I’m hopeful that our approach will provide these women with lasting relief.”

http://www.curetoday.com/publications/cure/2016/breast-2016/that-tingling-feeling-new-therapies-are-evolving-for-peripheral-neuropathy?p=5

That Tingling Feeling: New Therapies Are Evolving for Peripheral Neuropathy

Excitement is growing over new strategies for treating or avoiding peripheral neuropathy in patients with cancer.
MARILYN FENICHEL
PUBLISHED: OCTOBER 21, 2016
Continue the conversation on CURE’s forum. >>
Talk about this article with other patients, caregivers, and advocates in the Breast cancer CURE discussion group.
During a neurofeedback session, small electroencephalogram (EEG) sensors are placed on the scalp and then connected to a computer. The sensors can track and record brain wave patterns. The participant then plays a series of computer games, with the goal of modifying aberrant waves. When a brain wave has been successfully modified, the participant receives a reward, either by hearing an appealing sound or viewing a pretty picture.

“This kind of learning is unconscious,” explains Prinsloo. “We find that, with repeated practice, usually over a period of 20 sessions, each lasting 30 minutes, the brain learns a new, healthier response to pain and numbness.”

Felecia Peters, 51, was recruited by MD Anderson to participate in its study for breast cancer patients. Diagnosed with stage 2 breast cancer in 2013, she started experiencing symptoms of CIPN while undergoing chemotherapy with Abraxane.

“It snuck up on me,” Peters recalls. “I had numbness, tingling and a sharp, stabbing pain in my feet that would come and go pretty quickly. Balance was also an issue. Sitting down and getting up was painful, as was using my hands to button things and put on small earrings. It hasn’t gone away since my treatment ended two years ago.”

The neurofeedback sessions were not difficult, though Peters remembers feeling sleepy sometimes. “The doctors wanted me to stay awake, but suggested that I nap when I got home,” Peters says. “They said that resting helps the brain remember what it just learned. Unfortunately, I wasn’t always able to follow that advice.”

After completing the 20 neurofeedback sessions, Peters has noticed a significant improvement; she hasn’t felt pain in a while, going up stairs is easier, her fine motor skills are better and she can also exercise more easily.

“I always walked, but now my feet don’t feel as heavy,” says Peters. “While I never fell, it was hard to feel what you were stepping on. It’s a weird feeling, hard to describe.”

As Prinsloo continues to work with women like Peters, she is optimistic that neurofeedback can make a difference.

“Neuropathy is a really debilitating condition,” Prinsloo says. “We’ve seen patients who can’t drive, button their clothes or get around without walkers. They can’t dance or enjoy life as much as they would like. I’m hopeful that our approach will provide these women with lasting relief.”
- See more at: http://www.curetoday.com/publications/cure/2016/breast-2016/that-tingling-feeling-new-therapies-are-evolving-for-peripheral-neuropathy?p=5#sthash.uMbx0EUT.dpuf